Resources for Parents

FREE STUFF!

Some downloads you may find helpful:

• Appointment Tracker
• Birth Plan Brainstorming
• Hospital Checklist

If you’ve been given a prenatal diagnosis, you’re also welcome to join our private support group, “From Diagnosis to Delivery.”

TRISOMY TALKS

A series of Parent Panel discussions featuring parents of children with Trisomy 13 and 18, these monthly video chats have covered topics such as trachs, feeding tubes, mobility devices, heart surgeries, child loss, and more. Even if your child’s diagnosis is different, you may still find great value in these recorded discussions.

Check out our past episodes and get a sneak peek at upcoming topics!

A BOOK FOR SIBLINGS

A family prepares for the arrival of a baby who will be “different” because of a unique chromosomal diagnosis. While gently preparing themselves for the challenges that their baby may have, they also are reminded that no matter what happens, their baby is special and loved. This book was written for the author’s own children after the family learned they were expecting a baby girl with Trisomy 18. The text not only ministers to children who may have a hard time understanding the facts about Trisomy 18/13, but also to parents and loved ones who may be shocked and grieving following an unexpected diagnosis. Beautiful illustrations add touching sweetness to the meaningful message. Note that both a girl version and a boy version are available.

A PREGNANCY JOURNAL

…for an unexpected journey.
Most pregnancy journals are full of unicorns and rainbows. But what about the mama who just learned her baby has a genetic condition, perhaps anomalies that have been labeled “life-limiting” or even “incompatible with life?” This special journal and planner will give your mind and heart a place to organize those thoughts and emotions, recording them so one day you can look back and see the treasure within them. Contents include: 

• Journaling pages plus prompts to help you remember details; 
• Space to record your baby’s diagnosis and unique needs; 
• Appointment trackers; 
• Ultrasound photo keeper; 
• Ideas for a baby shower; 
• “Letters to My Baby” section; 
• Birth Plan Brainstorming; 
• Hospital Checklist; 
• Memorial Service Planning;
• And much more.

***NOTE: ALL PROCEEDS BENEFIT THE VERITY’S VILLAGE COMMUNITY, WHICH SERVES FAMILIES WHO RECEIVE A PRENATAL DIAGNOSIS.

NAVIGATING THE NICU JOURNAL

A 30-Day Journal for Your Special Journey  

Whether you planned your NICU stay or whether this is all a complete surprise, this time in your life will be like no other. Your journey is worth cherishing and recording, no matter what lies ahead. This book is a guide to help you process and navigate the huge learning curve and emotional ups and downs of the days and weeks following Baby’s birth. This 30-day journal gives you space to record all kinds of information, including:

• Baby’s stats 
• People you meet with and learn from
• Doctors and nurses of the day
• Medical information
• Daily gratitude exercise
• Mood(s) of the day
• Your own thoughts and feelings
• And more! 

With pro tips from experienced NICU moms sprinkled throughout, you’ll find hope and encouragement for each day from a community who is cheering you on from afar.  

***NOTE: ALL PROCEEDS BENEFIT THE VERITY’S VILLAGE COMMUNITY, WHICH SERVES FAMILIES WHO RECEIVE A PRENATAL DIAGNOSIS.

VERITYS VILLAGE STORE

Special designs for special people!  From “My Tubie Baby is as cute as a button” to “Yes, actually, I AM compatible with life,” these designs inspire conversations that can gently educate and bring awareness to the lives of our special children! All proceeds benefit the Verity’s Village community. You can even design your own products, perhaps for a fundraiser of your own!

PARTNERS AND LIKE-MINDED ORGANIZATIONS