Author: Michael
Evangeline Renee Williams
November 15, 2024On September 25th 2023 at our 20 week antenatal scan we received unexpected news that our baby had a heart defect. I was upset but never once considered a genetic reason and assumed at worst our baby might need heart surgery after she’s born. A week later we were flown to a specialist appointment where […]
more...Colette Cook Hasty
November 15, 2024NYSSA’S STORY… Colette was given the diagnosis of Hypoplastic Left Heart Syndrome and Trisomy 6p Unique. Before even getting a full picture of what HLHS was, we were told to abort our first child. We refused and chose life instead for her! We didn’t care what “could be wrong” and knew also, just because something […]
more...Rosalie Walker
November 15, 2024Our baby was given a “lethal” diagnosis at our 20 week anatomy scan. We were told she had “agnathia otocephaly”. Her ears were where her jaw should be, she didn’t have a mouth or nose and she had one centrally located eye. Her head was smaller than it should be and her brain didn’t split. […]
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